Golden
Human Variome Project

Human Variome Project

The Human Variome Project is an international non-governmental organisation working to build capacity in the practice of responsible genomics and an official partner of UNESCO.

All edits

Edits 3 days ago
Meredith Hanel
Meredith Hanel edited 3 days ago
Edits made to:
Article (+1181/-132 characters)

Article

The Human Variome Project was first conceived at a meeting of various international genetic bodies in Melbourne, Australia in 2006and founded by Professor Richard Cotton. The Human Variome Project (HVP) is an international non-governmental organisation that is working to ensure that all information on genetic variation and its effect on human health can be collected, curated, interpreted and shared freely and openly.

...

The Human Variome Project provides a central coordinating function for national and international efforts to integrate the collection, curation, interpretation, and sharing of information on variation in the human genome into clinical practice and research. They are a Consortium of researchers, healthcare professionals, policy makers, and organizations from 81 countries. Organizations partnered with the HVP include UNESCO, national and regional human genetics societies and national governments.

...

The Human Variome Project was first conceived at a meeting of various international genetic bodies in Melbourne, Australia in 2006.

The HVP establishes standards, guidelines and best practices for the responsible development and operation of genetic variation data sharing infrastructure, facilities training, public education and education of the clinical genomics field. The organization assists in embedding data sharing into routine clinical practice. 



HVP establishes HVP Country Nodes to ensure handling of data is respectful of diverse ethical, legal and social differences in member countries. An HVP Country Node has three components: I) a repository for collection and storage of genomic variation generated within each country; II) a governance structure that is consistent with ethical, legal and social requirements; III) a set of policies and procedures that ensure operation and maintenance of the repository in a responsible and accountable manner. As of 2015 there were 23 HVP Country Nodes. 





Edits on 1 Jul 2019
Jessica Karpinski
Jessica Karpinski edited on 1 Jul 2019 10:49 pm
Edits made to:
Further reading (+3 rows) (+9 cells) (+356 characters)

Further reading

Title
Author
Link
Type
Date

Beyond the genomics blueprint: the 4th Human Variome Project Meeting, UNESCO, Paris, 2012

Maija R.J. Kohonen-Corish MSc, PhD et al.





The Human Variome Project. - PubMed - NCBI

Burn J and Watson M

Web



What is the Human Variome Project?







Edits on 16 Nov 2018
Jude Gomila
Jude Gomila approved a suggestion from Golden's AI on 16 Nov 2018 2:23 am
Edits made to:
Infobox (-3 properties)
Article (+9/-9 characters)

Article

The Human Variome Project was first conceived at a meeting of various international genetic bodies in MelbourneMelbourne, Australia in 2006.

Carla Faraguna
Carla Faraguna edited on 15 Nov 2018 11:27 pm
Edits made to:
Description (+34 characters)
Topic thumbnail

Human Variome Project

The Human Variome Project is an international non-governmental organisation working to build capacity in the practice of responsible genomics and an official partner of UNESCO.

Carla Faraguna"Approved suggestion from source: https://twitter.com/globalvariome"
Carla Faraguna approved a suggestion from Golden's AI on 15 Nov 2018 11:26 pm
Edits made to:
Topic thumbnail

Human Variome Project

The Human Variome Project is an international non-governmental organisation working to build capacity in the practice of responsible genomics and an official partner of UNESCO.

Carla Faraguna
Carla Faraguna approved a suggestion from Golden's AI on 15 Nov 2018 11:26 pm
Edits made to:
Article (+9/-9 characters)

Article

The Human Variome Project was first conceived at a meeting of various international genetic bodies in Melbourne, AustraliaAustralia in 2006.

Carla Faraguna
Carla Faraguna approved a suggestion from Golden's AI on 15 Nov 2018 11:26 pm
Edits made to:
Article (+12/-12 characters)

Article

The Human Variome Project provides a central coordinating function for national and international efforts to integrate the collection, curation, interpretation, and sharing of information on variation in the human genomehuman genome into clinical practice and research. They are a Consortium of researchers, healthcare professionals, policy makers, and organizations from 81 countries.

Carla Faraguna
Carla Faraguna edited on 15 Nov 2018 11:26 pm
Edits made to:
Infobox (+3 properties)
Description (+143 characters)
Article (+748 characters)
Categories (+1 topics)
Related Topics (+3 topics)
Topic thumbnail

Human Variome Project

The Human Variome Project is an international non-governmental organisation working to build capacity in the practice of responsible genomics.

Article

The Human Variome Project is an international non-governmental organisation that is working to ensure that all information on genetic variation and its effect on human health can be collected, curated, interpreted and shared freely and openly.



The Human Variome Project provides a central coordinating function for national and international efforts to integrate the collection, curation, interpretation, and sharing of information on variation in the human genome into clinical practice and research. They are a Consortium of researchers, healthcare professionals, policy makers, and organizations from 81 countries.

...

The Human Variome Project was first conceived at a meeting of various international genetic bodies in Melbourne, Australia in 2006.

Infobox

Categories

Related Topics

Edits on 1 Jan 2017
Golden AI"Initial topic creation"
Golden AI created this topic on 1 Jan 2017 12:00 am
Edits made to:
Article
Topic thumbnail

 Human Variome Project

The Human Variome Project is an international non-governmental organisation working to build capacity in the practice of responsible genomics and an official partner of UNESCO.

No more activity to show.